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New Delhi, July 10:
A new study by the National Institute of Technology (NIT) Rourkela has spotlighted the often-overlooked struggles of caregivers raising children with developmental disabilities in India. Despite recent advances in disability rights, the research reveals that parents—especially mothers—endure significant physical, mental, and financial stress, underscoring the urgent need for systemic and community support.
Published in the Asia Pacific Journal of Social Work and Development, the study surveyed 400 parents of children diagnosed with autism, ADHD, cerebral palsy, and multiple disabilities. Researchers found that the relentless demands of caregiving frequently lead to emotional exhaustion and a range of physical symptoms, including headaches, ulcers, chronic pain, and fatigue. These effects, particularly pronounced among mothers who often bear the brunt of caregiving, severely diminish overall quality of life.
While deteriorating physical health was found to partly explain the impact of stress, the study also identified financial hardship as a major, independent source of strain. Many families face barriers in accessing appropriate care and services, which compounds their sense of isolation and stress.
Dr. Ramakrishna Biswal, Associate Professor at NIT Rourkela and lead author of the study, emphasized the need for a societal shift in the perception of caregiving. “Disability rights are rightly acknowledged, yet the invaluable contributions of caregivers often remain in the shadows. Caring for such children should not rest solely on parents—it is a shared responsibility of family, neighbours, and society,” Dr. Biswal stated.
The researchers recommend integrating caregiver health and stress assessments into pediatric disability services and establishing community-based support centers where families can access medical, mental health, and financial assistance in one place. The study also highlights how social stigma, limited awareness, and inadequate infrastructure in India further intensify the challenges faced by caregivers, leaving many parents feeling unsupported and unable to access essential therapies or respite care.
Dr. Biswal concluded, “Caregiving is a demanding journey, but with non-judgmental support and wholehearted cooperation from trusted individuals and communities, caregivers can find strength, relief, and validation. Let us recognise their rights and ensure they, too, enjoy a life of dignity and fulfillment”.
Disclaimer: This article is based on findings from a study conducted by researchers at the National Institute of Technology (NIT) Rourkela and published in the Asia Pacific Journal of Social Work and Development. The information presented reflects the study’s results and expert commentary as reported in multiple news sources. Readers are advised to consult healthcare professionals for individual advice or support.
